I have to admit that I too, feel the “welcome to my world” vibe. I feel it hard. I can’t pretent that thoughts like that aren’t popping up in my head from time to time.
In the current situation people can’t go to the movies. They can’t go to work (unless you’re an essential worker like nurses, doctors, police officers, sanation workers, etc. in which case – you are amazing). They can’t go to museums, theaters, or meet up for drinks with their cool friend group.
And, well, that’s just a regular Tuesday for people who have chronic health problems, or spoonies as we call ourselves.
It’s weird to think that just a little while ago, I posted this post, about how to stay motivated and inspired when everyday is more or less the same. When you don’t have the options of ‘mixing things up’ that able-bodied people do. Well guess what, we are all in that boat now, and boy is it strange. We spoonies have never been in that boat with able-bodied people together.
So yeah, I do feel like people are getting a taste of my life, and how forking hard it is sometimes. I am guilty of that.
I’m not a big fan of spoonies putting stuff like that out there on the socials right now. Not at all.
Because for all those able-bodied people out there, it is still really jarring to suddenly not be able to do anything except sit at home. And don’t get me wrong, the extreme impact the coronavirus has on the world is jarring for everyone, spoonie or not. It’s not like this isn’t scary for spoonies. We are more vulnerable than most already, so even though we’re used to sitting at home and aren’t particularly bothered by that part, the whole situation is still scary for us.
It just feels like within the spoonie community, there is a lot of sympathy for the spooniestruggles that come with this situation. There is also plenty of sympathy and commiserating about the fear we all feel right now (whether you are healthy or not). But there isn’t a whole lot of sympathy from spoonies toward able-bodied people, about how unsettling it is for them to all of a sudden have to spend so much time in isolation.
When my life fell apart
I remember what it was like for me, when I went from being a healthy person to a spoonie. When all of a sudden I couldn’t do any of those things mentioned above. When all of a sudden I was somebody with chronic pain. It was rough.
And, sure, back then, I was in it alone. It wasn’t a global situation like it is now, nobody was singing to me from their balcony.
And if I had started to sing from mine, chances are it would have ended up like this:
So yeah, lonely times for sure.
Also, I was in a shitload of pain. Another thing that able-bodied people don’t have to deal with right now.
But I do remember how unsettling it is when so many things are suddenly off limits to you.
More kindness, less gloating
So I hope spoonies all around the world can be a source of comfort to everybody, not a source of ‘ha ha how do you like walking in my shoes for the next couple of weeks’.
Let’s reach out to people and give them advice on how to handle being at home, all day every day.
Let’s reach out and share our tricks and knowledge about keeping busy and entertained, hopeful and inspired – all from the comfort of our own homes.
Let’s be kind. Let’s make them feel heard, instead of “haha-ed”, so that maybe – once they get back to their workplaces, movie theaters and cafés – they will think of us and realize that we don’t have that luxury.
Once the world gets back to normal, this hell is over for them. Not for us though.
But at least from that moment on, able-bodied people will understand more what we go through every day. And they’ll take their health a bit less for granted.
Or maybe they won’t take it for granted at all – wouldn’t that be something.